Made possible by charitable contributions from Astellas/Pfizer and Bayer. Thank You!
Spring has sprung and we’re closing out the month of March with the April 2018 issue of the Hot SHEET newsletter from Us TOO.
We hope you can join us on Monday, April 2, at 8:00 pm ET for The Metastatic Prostate Cancer Project – a FREE webinar in collaboration with Answer Cancer Foundation, The Broad Institute, and Dana-Farber Cancer Institute. Dr. Eliezer Van Allen, the project’s principal investigator, will lead the presentation and Q&A. We’ll discuss how researchers in this project take a new approach to speed up cancer research by asking men, who are managing metastatic and/or advanced prostate cancer, to share their samples and clinical information. Learn more about the project at: www.MPCproject.org; and find the webinar agenda and instructions for joining at: bit.ly/2DM78ba.
Prostate cancer patients and caregivers are invited to comment on a draft document on anti-androgen drugs for high-risk prostate cancer from The Institute for Clinical and Economic Review (icer-review.org). The report is expected to include enzalutamide (Xtandi®), abiraterone acetate (Zytiga®), and apalutamide (Erleada™). The draft scoping document is at: bit.ly/2DMqFs9. Comments should note what’s most important to patients about castration-resistant prostate cancer and address anything that’s been overlooked in the draft scope, information such as side effects, affordability, patient groups, and important treatment outcomes. Comments should be submitted as a Word document in 12-point Times New Roman font not to exceed three pages. Comments are accepted through Monday, April 2, 2018, and can be submitted as an email attachment to firstname.lastname@example.org. For more information refer to The ICER Patient Participation Guide at: bit.ly/2FXzyoq, and The Stakeholder Engagement Guide at: bit.ly/2mVLSax.
LivingWith is a new FREE app for mobile devices. It’s designed to help manage life with cancer by connecting with loved ones, asking for help, improving communication with doctors, and staying organized – all in one place. Check it out at: bit.ly/2DOffnz.
A FREE educational webinar on androgen deprivation therapy (ADT) is available to prostate cancer patients and their partners who are on, or about to start, ADT. This 90-minute interactive webinar is professionally facilitated and offered on March 28th, April 10th, and April 26th at 3:00 pm PT. Space is limited. Get more information and register at: LifeOnADT.com.
Join National Alliance of State Prostate Cancer Coalitions (NASPCC) for a webinar on AR-V7 Splice Variant and Treatment Choices in Prostate Cancer. The webinar takes place on April 3 at 6:00 PM (Central). Register at bit.ly/2I4m6M7.
Enjoy the spring season, take care, and let us know how we can help you with educational resources, support services, and personal connections to others in the prostate cancer community.
All the best,
Chuck Strand, Chief Executive Officer
Jackie Konieczka, Office Manager
Terri Likowski, Program Director – Support Group Services
Tim Mix, Communications Manager
Amy Woods, Director of Development
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